So, we took the plunge. After MUCH discussion with our Early Intervention team and audiologists, some prayer, and LOTS of anxiety, we made the call and got an appointment in a couple of weeks for a consult at The Listening Center at Johns Hopkins. Hopkins is one of the best Cochlear Implant hospitals in the country. Our consult is just the beginning of this next turn in our journey, and who knows where it will take us. We're not even sure if Christian would be considered a candidate.
Once again, we're waiting and trying to be patient.
Showing posts with label waiting. Show all posts
Showing posts with label waiting. Show all posts
Tuesday, February 19, 2008
Thursday, November 15, 2007
Waiting...again....
I just finished putting some calls into several Genetic Counselors. The earliest we can be seen is April...of 2008. Should I be surprised? No. I mean, did have to wait almost 6 months for a sedated ABR, and Christian finally got his aids at 9 MONTHS OLD. Waiting I guess is part of this game. And I hate it!
Some friends and family have asked us why we even wanted to do the genetic testing. The answers to this test are not going to influence our decision to have more children. For that, it doesn't even matter to us. Chuck and I just want to know if Christian's loss comes from a wonky recessive gene that we have, or if it was a spontaneous occurance. IDing the source of his loss will also help us rule out any other syndromes that sometimes come with SNHL.
So, we're just going to play the waiting game...something that we are all too familiar with !
Some friends and family have asked us why we even wanted to do the genetic testing. The answers to this test are not going to influence our decision to have more children. For that, it doesn't even matter to us. Chuck and I just want to know if Christian's loss comes from a wonky recessive gene that we have, or if it was a spontaneous occurance. IDing the source of his loss will also help us rule out any other syndromes that sometimes come with SNHL.
So, we're just going to play the waiting game...something that we are all too familiar with !
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